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HELP C3 FIND LIFE-ALTERING TREATMENTS FOR THOSE LIVING WITH LGMD2A/R1 (CALPAINOPATHY)

"One of the hardest parts (about living with LGMD2A/R1) is slowly losing your independence and mobility. It is really hard to continually adjust my expectations for my life. It is hard to not feel defeated when I have to keep letting go of activities I used to be able to do. And I’m especially scared of the future because my muscles will only grow weaker without treatment."

"Voice of the Patient Report: LGMD Subtypes 2C, 2D, 2E, 2F, 2A, and 2I"
Submitted to the U.S. FDA, February 2023

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